Ehlers-Danlos Syndrome, more commonly referred to as EDS, is a collective term for a group of inherited connective tissue disorders that often affect the joints, skin, and blood vessels, thus resulting to unstable joints and fragile skin. The abnormality is caused by faulty collagen, which is an important protein that adds elasticity and strength to connective tissues. There are many different types of EDS (6 major types and at least 5 minor types), each classified in relation to their signs, symptoms, and manifestations. EDS has a 1 in 2,500 to 1 in 5,000 occurrence, affecting both men and women. The Ehlers-Danlos National Foundation is a non-profit organization that mainly seeks to build a community of people with the same goal: which is to provide and share information about EDS, while providing a community of support among those affected by the disease. Their main mission is to create and distribute resources for people affected by the disease. If you want to help support the programs led by EDSNF, you can make a car donation through this website.
The Ehlers-Danlos National Foundation works hard to create and distribute accurate resources and information about EDS. With the use of various technologies and online platforms, they are also able to reach more individuals affected by the disease and provide a support and communication network for them. Additionally, the group helps in fostering and funding research and clinical studies relating to diagnosis, early detection, and treatment of the disease. The foundation was started by Nancy Rogowski and 1985, and now has thousands of members. They distribute materials to healthcare providers, and regularly publish a newsletter that features numerous articles about EDS, new research findings, and other human interest stories. Their website offers comprehensive materials and educational literature for healthcare professionals and patients. With your car donation, you can help EDSNF fulfill their mission of reaching and making a change on the lives of people with EDS.